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Rebecca Thomson Guest Post

Today’s guest post is from Rebecca Thomson.

Let’s get right into it.

Myths and Legends

Urban legends – we’ve all heard them. Chant ‘Bloody Mary’ three times into a mirror, and she’ll appear behind you. The girl whose boyfriend goes out to get fuel for the car, and is found dead on the roof the next day. The list goes on and on. They’re stories to scare children, disturb adults, and share via those annoying chain emails that everybody hates. But most people know that they’re not true.

Diabetes is no different, when you get down to it. As a disease, it’s surrounded by so many myths and legends that are completely ridiculous. These are the things though that sadly, Joe Public on the street believes to be true. There is so much ignorance out there that it can be frustrating/saddening/infuriating/blood boiling. Choose as you feel appropriate. For me personally, I often find myself split between any of the above. It can depend on what you come across.

I’m very fortunate really, in that in my social circles, I don’t tend to come across that much ignorance. That’s not to say that I haven’t come across any, because I have. I’ve been asked whether I have ‘the one where you’ve got too much sugar, or the one where you haven’t got enough’, and I know my mother had to field off questions from a cousin about how long I was going to have diabetes for, and when it was going away. I was told to ‘call back when (I) came off insulin’ in regards to donating blood. But on the whole, I’ve been extremely lucky that when someone I’m with doesn’t understand a thing, they’ll usually listen to me when I try to explain. Which is great. But I know that unfortunately this isn’t the norm.

You can catch diabetes. You get it from eating too much sugar. Children grow out of it. You’ll go blind/have your legs cut off/die young. You have to eat special ‘diabetic’ foods. You can’t ever eat chocolate. Note – none of these are true. Yet they are all things that you hear people saying, or come across online. Then on the reverse, it’s not exactly uncommon to hear or read things like ‘diabetes isn’t serious’, or that insulin cures diabetes. And let’s not get started on the ‘snake oil salesmen’ that are ten a penny. Though should you feel that some magic berries, grass juice or similar might be fun for a laugh, you’re probably sorted.

The media makes a mistake in an article. People read and believe the media. That becomes generally accepted information – ‘it has to be true because I read it in the Daily News!’. (http://www.youtube.com/watch?v=5eBT6OSr1TI – don’t feel you have to link it, but it rather proves the point, I think! ) Why would they lie? But whilst they’re not giving you the right facts, I’m not convinced that it’s outright lying.

What can be done about it all though? That’s the million dollar question. Shoddy journalism by the mass media doesn’t help. Sometimes I wonder whether it’s just a general lack of education. If the writers of many articles were to spend two minutes fact checking with someone actually knowledgeable about diabetes, perhaps the continuing cycle of misinformation could be avoided. There are plenty or reputable sites and sources out there for fact checking. Major diabetes charities have good basic summaries of both types of diabetes on their websites, for a starting point.

I can empathise somewhat with large scale education campaigns only tailoring to one aspect of diabetes. Educate about Type 2, then there’s the risk you’re spreading misinformation about Type 1, and vice versa. Diabetes is a broad and complex disease, with so many different types, variations, treatments and so forth. It’s a lot for someone who might know nothing about it to wrap their head around. You don’t want to overload a person to the point where they’re no longer interested. But there’s got to be a middle ground, surely? It’s just where to find it.

Guest Post – Michael Hoskins

Today’s guest post is from Michael Hoskins.  You know him from The Diabetic’s Corner Booth.  Here ya go:

A recent guest blog post by Cherise about job interviews and diabetes made me think about how our common chronic condition applies on the job, once we’re actually doing whatever they hired us to do.

Who do you tell? When do you tell them? How do you prepare for regular daily activities and those special instances, and what is the response if diabetes interferes? How do you respond to those who may witness a Low or have to fetch candy or juice in response?

The Working D-Life can present any number of issues depending on the type of business or industry one works in, and how often they’re exposed to that role. For example, an office worker sitting in front of a computer or on the phone all day will likely face different issues and hurdles than someone who works retail and stands all day at a cash register or outside doing yardwork.

I’ve had my share of High and Low D-Experiences on the job during my life, in various positions. From hectic newspaper jobs, stable office positions, active retail roles in grocery stores, banquet hall server, and outdoor landscaping. Each has presented its own nuances in dealing with diabetes on the job. Most of my employers and co-workers have been understanding and willing to work with me. Haven’t experienced any discrimination or unfair treatment that I’ve heard others have had in their own lives.

Professionally, I’ve been sitting in front of a computer at work when without warning my blood sugar dropped dangerously Low – leading me to get tired and put my head down, resulting in my passing out on the floor and having my coworkers call the paramedics. That position didn’t last long, but it wasn’t specifically because of that experience that did create embarassment and guilt in my time afterward.

I’ve also worked in retail positions in my younger years and as a restaurant server, and it just meant being more diligent in testing and making sure everything was OK to work. Outside landscaping presented some interesting issues right after my high school graduation (before insulin pumping), but again it was all manageable and just meant having some candy or quick-acting carbs on hand just in case. Of course, fleeing from the bees and wasps presented an entirely different and more concerning challenge!)

My last reporting position at a daily newspaper was anything but conducive to effective D-Management for me, and it only lasted a couple rocky years in large part because of my suffering health. This wasn’t a role I could be lax in working, and work from a home office or take it slow when feeling Low or High. Always on deadline and on the go, and it was brutal on my body. Thankfully, I found what I describe as a perfect job at a legal newspaper that publishes twice a month and allows for MUCH more flexiblity.

Working with a small team of five people (my boss, a managing editor, and two other reporters), everyone is aware of my health issues and they’re extremely understanding. I told my boss and supervisor up front about my health issues (second interview, if I recall correctly). No one hesitates to help or support or give me flexibility whenever needed. My boss doesn’t step overboard in sometimes “acting like a mom,” and I can’t stand that it sometimes is necessary, but she makes a point to know my schedule just in case I don’t appear as normal. I write down all my interviews and meetings on my desk calendar or let someone know in advance if there’s a change, and if by chance she can’t reach me we have the emergency contact (my wife) on hand to jump into action. My boss is about the best I’d ever be able to find, and loves learning more whenever there’s time and I care to share aspects of my D-Life.

That flexibility and work support is something you can easily take for granted, but it makes all the difference in creating a place you want to come to everyday as far as having that great quality of workplace and achieving a balance between health and job duties.

Cherise Guest Post – Job interviews and Diabetes


Day 3 of guest post week is a post from Cherise.  Please be sure to follow her on Twitter because she is very active and gives great advice and comments.

I  would  like  to  thank  Chris  for  inviting  me  to  do  a  guest  post  for  him.    I  am  honored.

There  once  was  a  girl  named  Cherise,  she  lived  in  California  but  soon  to  relocate  to  Indianapolis.    She   knew  she  had  to  find  a  job  but  where  and  what  to  look  for.    Cherise  searched  high  and  low.  She  applied   for  many  jobs  but  no  one  would  respond.    She  almost  gave  up!    One  day  she  received  an  email  from  Sue.   Sue  asked  if  she  would  like  to  come  in  for  a  job  interview  on  Thursday.    Cherise  was  excited.    Could  this   be  it?  She  texted  her  husband  and  off  she  was  to  Kansas  City,  MO  to  hitch  a  ride  with  her  mother  to  the   great  city  of  Indianapolis.      Cherise  knew  she  had  to  eat  something  to  keep  her  blood  sugars  from  rising   but  she  didn’t  have  a  clue  what  to  eat.    Cherise  said, “I  can’t  eat  too  many  carbs  because  I  will  get  sleepy   but  if  I  don’t  eat  enough  carbs  I  will  go  low.”  Off  to  the  waffle  house  she  went.

She  ate  bacon,  eggs   and  hash  browns.      She  looked  at  her  iphone  and  it  was  time  to  go.  
This  is  how  the  interviews  went.

Interview  number  one:
  Hi!  My  name  is  Cherise.    I  have  diabetes.    If  you  hear  anything  alarming  or  buzzing  don’t  be  alarmed.    It   could  be  my  insulin  pump  or  my  continuous  glucose  monitor.    It’s  a  little  hot  in  here  can  I  take  my  jacket   off?    The  interview  lasted  an  hour!  It  was  fun  and  I  enjoyed  talking  to  all  three  of  the  ladies  in  the  room.

Interview  number  two:
  Hi!  My  name  is  Cherise.    I  have  diabetes.    If  you  hear  anything  alarming  or  buzzing  don’t  be  alarmed.  It   could  be  my  insulin  pump  or  my  continuous  glucose  monitor.

Sue: “What  if  your  blood  sugar  goes  low?  What  do  you  do?”

Cherise:  ␣I  have  glucose  tablets  I  carry  with  my  all  the  time.    I  eat  a  few  of  them;  they  bring  my  blood   sugar  up.    After,  I  eat  the  glucose  tablets  I  try  to  eat  something  that  has  protein  in  it  to  keep  my  bg’s   leveled.”

Sue:  “Ok,  would  you  like  a  glass  of  water?”

Me:  “Yes.␣”

The  interview  lasted  about  an  hour  and  a  half.    It  went  great.    I  met  with  2  people.    I  was  asked  about   going  back  to  school  and  why  I  wanted  to  become  a  CDE.

Interview  number  3:
  This  interview  was  sprung  on  me  at  the  last  minute.    I  was  a  little  exhausted.    Seriously,  I  started   interviewing  at  8am….. now  1pm.
  I  repeated  the  same  opening  speech.    I  was  excited!  I  have  never  had  3  interviews  at  once  and  all  in  the   same  place.    My  bg’s  did  not  drop  and  I  was  offered  a  2  positions  out  of  the  3  I  interviewed  for.    I  know   some  people  don’t  like  to  disclose  that  they  have  diabetes  when  interviewing  for  a  job  but  I  try  to  be   honest  up  front.    I  try  to  be  open  and  honest  with  everyone.    I  have  to  go  to  the  endocrinologist  every  3   months.  I  could  go  low  one  day.    IMO,  the  more  people  who  know  about  me  having  diabetes  the  better   it  is  for  me  in  the  long  run.

In  case  you’re  wondering,  I  went  with  job  number  2.

Do  you  inform  your  potential  employer  that  you   have  diabetes?

Be  Blessed

Cherise

Scott Johnson Guest Post – Resignation Versus Resolve

Day 2 of guest post week is Scott Johnson.  He is a great person to know if you don’t know him already.  If you are not following him on Twitter already, then please follow him right now.

I recently wrote a blog post (“Screw It! I’ll Just Eat The Rest”) about not wanting to finish my dinner. My brain almost imploded when I tried to think about my insulin and how it would affect me if I stopped eating. So naturally, I posted about it!

I think it’s important to talk about those sorts of situations because it gives those around us a glimpse of how difficult food can be for us. While food is only a small part of our daily life with diabetes, it seems to take up more energy than it should. At least that is how it seems to me.

I got so many wonderful comments from that post (thank you!), but there was one that hit me and stuck in my head.

Barbara said:

“What I am wrestling with now is balancing resignation with resolve to keep trying and working on it. I think that the key is to try and keep figuring out how to tolerate all these diabetes difficulties which you describe so well. I pray for strength and resilience because most of it can’t be ‘fixed’, just tolerated.”

Thank you Barabara, for such a great comment. That is something I wrestle with all the time! It’s really a tough thing! There is very little positive reinforcement with our diabetes management. Think about it! If we do well enough, the encouragement we get is lack of negative consequences! That is not the same thing as positive encouragement.

The amount of work it takes to maintain anything close to normal is mind-blowing. Many of us try so very hard, but still struggle more often than not. The messages we receive when we’re not doing so well are all negative. Those messages come from many places (including our own heads!), and often get skewed by our huge load of guilt (why do we feel so guilty?).

I am all too familiar with the “resignation” that Barbara talks about. It usually comes to me in one of two ways. One is after I’ve tried SO HARD and still can’t seem to do well enough. The other is a slower, sort of grinding down of my resolve to keep trying. I think that one in particular is from the lack of positive reinforcement.

I try very hard to not be negative, and honestly, it’s not always negativity directly, but rather the LACK of positive signals and messages. If I do great – well, that’s expected. If I do poorly, then by default I’m not working hard enough. It’s a failed feedback system that has been built into so many of us.

Have you ever had a really great A1C? You and the doctor might celebrate for 5-10 minutes, then you’re back out in the world again. You are expected to maintain that fabulous A1C, and often to work even harder to get it down more! There is constant frustration built into something that always has room for improvement. It is a hard, hard balance for us to find. The balance between resignation and resolve is slippery, and most often a moving target. What is the answer? IS there an answer?

Lorraine/Caleb Guest Post – The Power of Perspective

With all of the great blogs that are out there, I decided to run a guest post week.  I want my readers who are not your readers to become readers because I know how great your blogs here.  Well, let’s get into blog week.

First up is Lorraine, mother of Caleb.  Her blog is This is Caleb.

The Power of Perspective

When Caleb was diagnosed, I assumed I would handle the challenge of his diabetes as I had handled countless others in my life – independently.

“Strong”, “responsible” and “independent” are words used to describe me for as long as I can remember.  My presumption was therefore that I could, and even should, handle this by myself.

It took several months for me to reach out to others.  I joined a few online forums, mostly geared toward parents of PWD.  These people were a treasure.  Whenever I had a question, they not only had the answers, and had them quickly, they had the perspective I needed and did not find in friends, family or even doctors.  These forums became a lifeline for me.

But my questions became very specific and I had to figure out all the little Caleb nuances on my own.  I found myself on these forums less and less as I was spending my time on charting, tracking, evaluating, and analyzing Caleb’s numbers.

I became so engrossed in figuring things out, I isolated myself from the support system that had been holding me up, and I didn’t even realize it.

Then I came upon the TuDiabetes community.  Although within this community there are parent groups that I value, the variety of diabetics is broad.  I had entered a whole new world of information and experiences from which to learn.  I followed discussions and read experiences of the adults that live and have grown up with diabetes and found these views very informative and valuable.  It provided a new comfort.  I was getting a glimpse into Caleb’s future that until then, was very uncertain to me.

It was a new perspective.

This led me to join Twitter to follow Team Type 1.  Almost instantly someone I didn’t know was following me.  How does this Twitter thing work and who is this Scott Johnson guy and why is he following me?  It was days before I took the leap to follow him back, but soon the floodgates opened and I was following and being followed by lots of people in the DOC.  I was reconnecting with parents and getting that much needed support back, but I was making new relationships too.

To that point, I viewed parents of PWD as distinct and separate from PWD themselves.  My mindset was born out of respect for people who live with this responsibility every day.  As much as I understand and as much as I bear the responsibility for Caleb’s diabetes management, I am not the person living it.  As such, I never expected someone with diabetes to have any interest in anything I had to say about it, because really, what do I know?

I was wrong.

Although I did not literally have arms around me, I was most definitely embraced.  I was talking with people about diabetes and lots of other things.  I was being included in discussions and it was uplifting.  Scott is actually not a stalker.  He is a diet Coke-drinking, iPhone-using, basketball-loving, mega-blog-commenting super great guy, dad and husband.

The connections I have with PWD give me a view into Caleb’s mind, or at least the closest thing to it.  I sometimes see the wheels turning inside his head, but I don’t know what he’s thinking or feeling. Talking with the people who live this, and have grown up with it, helps me understand and empathize and thus make decisions not only in Caleb’s daily care, but in the big plan: the plan for him to gradually assume the responsibility for his own diabetes.

Just a few weeks ago, Chris himself shared some perspective – perspective regarding a mom’s worry about her adult son.  Thank you for that, Chris.  That little nugget is one of several that you and others have given me that will stay with me for years; probably forever.  I will never be able to repay you for that.

There was a time when I thought I should handle Caleb’s diabetes by myself.  I suppose I could, but I am glad I don’t have to.  Thank you, all my adult PWD friends.  You have given me, and therefore Caleb, so much.  You have welcomed me into your world, and I respect that I am just a visitor to a certain degree.  It gives me great comfort to know that when Caleb is ready, you will be there for him, and I am confident that he will be there for you.

I wonder if you know the power your perspectives have on me and other parents of KWD, and how sincerely we appreciate them.

Podcasts Every Friday from Now On

I have decided that I am finally getting around to doing the podcast ideas that I have had for a long time.  From now on, every Friday is going to be a podcast.  To start off with, they are not going to be live because scheduling confilicts are too difficult to manage with some guests at this point.

The podcast will be recorded sometime during the week and then will be posted on Friday.

If you have any ideas or topics that you would like to be discussed, please let me know.  If you would like to be a guest, then please let me know.

Also, guest post week is next week starting on Monday.

Have a great weekend everybody.

Almost Had My Cobra Coverage Cancelled

Phew!!  That was a close one.  My Cobra insurance was almost cancelled!  How much of a hellish experience would that have been if it did happen.  Here is the story.  I normally pay my Cobra insurance a month in advance.  So in April, I send a check for May, etc.  For some odd reason, I didn’t send a check in March to pay for April, so when I sent a check in April, it was paying for that month, not paying for May.  The other day I received my invoice and it said that I owed for May and I had to pay before May 31 or my coverage is cancelled, and they are not flexible with their payment dates AT ALL!.  So it was May 31 and the post offices are closed so I am freaking out.  Finally, I was able to speak to them on Tuesday, June 1 and they said that since May 31 was a holiday, they will accept the payment as long as it is postmarked on or before June 1.

Well, I never drove faster to the post office in my life!  I did not take any chances and had it overnighted.  I took the extra charges to overnight it because I wasn’t 100% sure if it went regular mail that it would be post-marked by that day.  If it was sent overnight, I knew it would be post-marked.

I plan on calling later today to find out if they received the check and if everything is good to go with it.

What a close one.

Ever Feel Like You Are Always Falling Behind?

Do you ever get the feeling that no matter how hard you are working or how much effort you are putting into something that you are just always falling behind?  I’m sure I’m not the only one who feels this way.  Sometimes I just feel that I can never catch up.  No matter what it is.  As soon as you try to catch up on your work, you fall behind on exercise.  You try to catch up on tv / movies / reading, you fall behind on work.  You catch up on e-mails, Twitter, Facebook, and you fall behind on family time.  It is just one big revolving cycle.  There is one thing that sometimes takes a back seat, but I need to make sure it moves right up to the front of the line, diabetes.

Too often I am skipping a test because I am busy and just want to eat quickly and guestimate my bolus.  “I’ll just bolus for the carbs and then check later to correct”.  How often do you find yourself saying it?  Because I know I’m not the only one who odes that either. But as bad as I know it is, I still do it.  Why?  I guess it’s kind of like a kid knowing a stove is hot, but still touching it anyway?  Or is that just a bad analogy?

Why does it have to be so difficult to manage at times?  I do so well managing it for weeks at a time, but then I get complacent with my numbers and start to slack and then all of my hard work is now ruined with a few days of really high numbers.  That’s it.  I’m putting my foot down diabetes. You are not going to make me feel like crap ever again.  I am going to test, test, test and test again when I feel like you are starting to win a battle over me.  If you are gaining on me, I will send in reinforcements in the form of insulin and conquer you!

Take that one diabetes.

Big Plans for June

Over the last week or so I have not been very active online at all.  Every so often I do this on purpose to just take a break.  There are times that I am just on the computer way too much and miss out on a lot of fun things and time with friends and family.  There are things that I can’t stop doing on the computer, such as my work, but things like blogging and tweeting and reading blogs is what I am able to cut out for about a week or so.

I’m still here and doing well though.  My blood sugars have been pretty normal, some highs here and there, but nothing out of the normal.  Actually, right now while I am typing this my blood sugar is the highest it has been in a while, 397.  I think it was a little high before I went to bed and I went to the bathroom a few times in the middle of the night.  So I did the non-smart thing and just bolused for 10 units at about 3:00 a.m. without testing because I could tell my blood sugar was high (kids don’t try this at home).  10 units to you may seem like a lot, but to me, it’s nothing.  I’m on a 4:1 carb ratio, and my correction is 1 unit for every 8 “points” off of my target BG.  See why I go through one reservoir every day and a half?

Today is the start of a new month, and it is a big push business wise for me starting today.  I have some big goals set for the month of June, both health wise and business oriented.  Health wise, I plan on eating smaller portions and exercising a bit more.  Business wise, I plan on taking on 5 new clients. (Remember, I donate 10% of my contract price to JDRF or whichever you charity you choose).  With these 2 main goals, it is going to be hard to work them together.

The more clients I take on, the more time a day I need to spend on them.  So that means less sleep and less time to cook healthy and to exercise.  I hate having to be on a schedule, but I think it is the only way that I am going to get things accomplished.  I normally have a list of things to get done in the day, but no particular order or time to get it done.

Well, I am working on getting all the posts together for the guest post week that starts next Monday.  If you submitted a post, I will be sending you a DM or e-mail this week letting you know what day that your post will be up.

Have a great day.

Drop Dead Fred – Drop Dead Diabetes

Last night I watched the movie Drop Dead Fred.  The reason that I watched it was because my girlfriend and her brother were talking about old school movies that they liked and this movie was mentioned.  I vaguely remembered any of the movie, just a few parts that when they happened I said, oh yea I remember this part.  I was a young kid when I saw this movie, probably around 10 or so and I know I liked it, I just couldn’t remember why.  Now I remember.  That movie was so perverted and so dirty in language, that as a kid, I thought it was awesome that people were saying those words.

If you have never seen the movie or don’t remember, the girls imaginary friend, Drop Dead Fred, makes her do a lot of bad things.  As she gets older he starts to do things that ruin her life and she starts to hate him.  But at times, she realizes that he is there to stay and she just needs to live with him peacefully in order for things to be right.  Sort of sounds like something that we all have in common huh?

Except, it is not imaginary, it is real.  Diabetes makes me do things that I don’t like to do, like test blood sugar, take shots, get low and scare people that love me.  I know I am going out on a limb here to compare the two things, but use your imagination.

What movie character would you compare your diabetes to?

Please comment, or @reply me on Twitter.  I’d love to know.