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Life of a Diabetic Weekend Recap Vol 4

Man did this weekend fly by or what!  I don’t think that I got a single thing accomplished at all.  Friday started out with some high blood sugars during the day and some stress.  That’s why there was no Fired Up Friday last week.  I test drove a Ford Edge on Thursday night and fell in love with it.  I have wanted one of those cars for a long time and finally found the perfect one I was looking for.  It didn’t go so well on Friday when I tried to get the financing for it.  Since I have had a credit score, I guess dating back 7-8 years ago, I have had almost perfect credit, about 730 score ( I don’t mind sharing it when it was that high, ha).  Unfortunately, back in November when I lost my job, my credit score took a little dip.  So, ultimately, I was not able to get the financing needed for the car.

That was very stressful, so my blood sugar spiked like crazy.  I finally got it back under control around 5 o’clock or so when Amanda and I headed out for dinner and to a different casino then last week.  I had a turkey club with some coleslaw and my sugars went high by the end of the night again.  I’m not sure what caused the spike, maybe my diabetes?  I won money at the casino, so that was good.  And if you have been reading my last few weekend recaps, I’m not addicted to gambling, I’ve just been feeling lucky.

Saturday morning was just lying around doing nothing.  My girlfriend’s older brother and I played a little wiffle ball golf in the morning.  Basically we took a basketball and just threw it in the air and wherever it landed, that was the whole and first one to hit their wiffle golf ball into the basketball one the hole.  We played 9-holes and unfortunately, I pulled a Phil Mickelson and choked on the last hole.  We all then went down to the Panthers game last night against the Buffalo Sabres.  Now, let me just say this, if you are from Buffalo, oh well.  I come from Philadelphia, so I know all about being an obnoxious fan, Philly fans are the best in the world, HOWEVER, Buffalo Sabre fans are just annoying!  I can’t stand people that have an excuse for everything, like the refs made that call to keep the game close, that was a lucky shot, but when you’re team scores it was an amazing shot and when the other team gets a penalty it was a great call.  Just shut up ok?

Moving on.  Sunday was another Panthers game, back to backs are rough.  I also wanted to watch the race and some of the Michigan St basketball game as well.  I had so much laundry to do and work to catch up on as well from the weekend and not doing anything.  Sunday is usually my planning day.  I get out my calendar and pen and start outlining the whole week.  Client projects, blog ideas for a few of the blogs I write, to dos, etc.

Well, happy Monday to everybody and have a great day.

Hey JDRF & BD – This is What I Want in an Insulin Pump

All this press about all these new technologies and studies and companies joining up with non-profits to do this and to do that, and blah blah blah.  At first when I read the post by Amy from Diabetes Mine about JDRF and BD joining forces, it instantly just reminded me of the post I just had last week about why there will never be a cure! Next, it made me think, well what exactly is it that I want from an insulin pump or what do I want to have in order to manage my diabetes.  This is not like a Jetson’s post.  I am trying to keep this stuff logical and something that can happen in the near future.

Easy to Use

The very first thing that I want is for the device to be very easy to use.  Now that all pumps have built in carb counting and insulin suggestions, it makes life so much easier.  I love that they calculate how much active insulin there is.  Not too many buttons, just 2 or 3 at max to do what I need to do.

Convenient

What I mean by this is that I want to be able to use my iPhone to link with my pump.  My iPhone is my life, literally.  I work from it, I communicate with family, Amanda has one also so we have apps that easily keep us in touch and on the same page with each others calendars etc.  I want to be able to just pull out my phone at the dinner table or at a restaurant and hit a few buttons and then bam, there goes the insulin.  I would like to also just have to use my phone as a meter, not just anyphone, because I know there are phones out there, but the iPhone.

Tubeless

I still use a Medtronic Paradigm, so I have never even used the tubeless / wireless OmniPod yet.  The number reason that I don’t is because I use about 120 some units of insulin a day.  That only holds 200, so I would be changing the pod every day and a half.  I would a pod to be able to carry, let’s say, 600 units of insulin.  I basically only want to change reservoirs and infusion sets, or pods just once a week.  It’s less work I have to do and less garbage and sharps containers I go through.  Charge the same price, it doesn’t matter.

CGM Built-In

I want the CGM and the pod or infusion set to the be the same insertion.  I don’t want to have to wear two separate things.  Very clear on that.

Well, that is what I want in my insulin pump.  I know some of these things exist, but not all in the same pump.  So, when JDRF is giving their millions to these companies, I hope they have spoken with diabetics themselves on what we want, not just what they want to create and think will make life easier.

What do you want?

Why There Will Never Be a Cure

This is a conversation that I had today at lunched.  Now, some of you may agree and some of you will disagree, strongly.  The discussion was brought up about the $100 million Obama is going to send to the care of Haiti.  The question was posed to me, “Doesn’t that piss you off that they send $100 million to another country, and that money could be spent on diabetes research?”  Now, I didn’t know how to answer this question at first.  Of course I don’t want to see anybody have to suffer, but I also see the side that my tax money could go to something like research instead.  So, my answer was, “well, there will never be a cure.”

And then the conversation went on with my explaining why, which I will here as well.  And it can be summed it very easily.  You think we are in a recession now?  Find a cure to diabetes and see what kind of recession we hit.  How would scientists that spent their whole life searching for a cure and doing studies about diabetes get a paycheck if there was a cure?  How would they pay their bills.  How would the stores they shop at be affected.  How would the people that work for diabetes companies and products make a living?  It would hit our economy harder than just about anything.

Do I hope for a cure, of course!  Do I still donate funds and do volunteer work, of course.  But realistically, no, I don’t think it is likely.  There will be advancements in the management of it and there will be tools that may make it easier to live with diabetes and maybe even ways to rid yourself of all complications, but never a cure.  Companies can still make money off of advancements, but not off of a cure.

But like I said before, this thought will not stop me from doing what I can to help find one.

Do any of you share this same feeling?

It Feels Good to Feel Normal Again

Wow, this may be the first time all month that I have blogged in two consecutive days.  It is cold down here in south Florida, about 50 degrees.  I know that is nothing compared to the northeast where I am from, and where I am going next week, but for being down here, it is cold.  But it is a good cold, not a bad cold.  What do I mean by that?  It is nice to sit outside, exactly what I am doing right now.  I am sitting out back at Amanda’s house in a screened in patio typing up a blog.  I am away from Monday Night Football, away from the Panthers hockey game (which is taping, so I haven’t escaped it completely), and just relaxing in the nice outdoors of her 1 acre lot (for those of you who live in south Florida, you know the annoying condo / highway life that exists everywhere else).

Today was a long day at work as well.  It was tough and hard on my brain because I was doing things that I don’t think I ever did before in Excel.  As a consultant, I am open to doing pretty much whatever is needed by somebody, you have a question and if I have the answer, I do it.  Right now I am doing data analysis for Volvo Aero Service (pretty much sell jet engines and parts.)  There are a lot of parts and a lot of numbers that go along with jet engines, so it can be a little stressful getting the numbers into the correct places.

How has this affected my diabetes?  Not bad at all.  I have gotten back into a normal way of life, working 8:30-5:30, eating lunch at the same time, eating dinner at the same time, being more productive with my life and back to testing my blood sugar once an hour or two hours at most during the day.  I am eating better at breakfast and at lunch, dinner I am still trying to work on.  I don’t eat fast food breakfast anymore, like I did pretty much every single day at my old job and I don’t pay for coffee anymore, which saves me between the two about $75 a month.  I lost a little weight, but put some back on this past week because I was very stressed out about moving and getting out of my old house and into my new house.  I will get into that blog tomorrow.

Until then, I am signing off tonight.  Oh by the way, you may not see me tweeting as much, but I am still there in heart, I am reading, but not always posting.  I can easily read tweets during work, but I don’t always have the time to write something and then I just usually read them at night, but by that time it’s too late to respond to them.  I am finally back to living a normal life of a diabetic.

4 Essentials of Managing My Diabetes

We all have our favorite meter’s, pumps, syringes, glucose tabs, CGM’s, and whatever else you use to manage your diabetes.  Here are my top 4 essentials to managing my diabetes.

Medtronic Minimed Paradigm 722Insulin Pump

This is my insulin pump of choice at this time.  It is the one that I was given when I first got the pump 5 years ago, well it was a Paradigm 712 at that time, but I upgraded to the 722 at the beginning of the year.  I don’t have any issues with the pump, but there are some things that I do like with the other ones as well.  This pump is my life right now.  I would not be able to manage my diabetes as easily without it.  I did MDI and it just didn’t work for me, I eat too frequently and eat at random times that just make it best for me to use a pump and bolus at any given time.

Freestyle Lite MeterFreestyle Meter

For a very long time I used all One Touch products.  That stopped about a year ago when I received a Freestyle Lite meter, and I haven’t switched to another since then.  I absolutely love this meter.  I never have any problems, it’s small and the best part about it is the light it has.  I test more frequently, especially at night because of this light.  I would never test at 3 am because I didn’t want to turn the light on because then I can never go back to sleep.  With this meter, I can just turn on the light on the meter, test, and go back to bed.  I do use other meters in different situations.  I use a True2Go meter when I am traveling or golfing because it carries easier.  I look forward to trying out the Contour USB, who knows, that may become the new meter of choice, we shall see.CGM

Minimed CGM

Even though I don’t use this as often as I should, when I do, it helps me out tremendously.  My average BG levels are about 20-30 points lower when I use it.  It comes down to dealing with the pain of inserting a new sensor.  That is the number one reason that I hate to put it on because quite honestly, it hurts.  The needle is extremely long, so that’s not a plus either.  Once it’s on and calibrated I love it.

SkittlesSkittles

You may be wondering why this is one of my essentials.  Well, it’s because this is the most comfortable item that I like to use.  When I eat a bag of Skittles(the small bag shown here), I know how much it will bring up my sugar, which means that I don’t overeat.  When I am eating other things like glucose tabs or orange juice or whatever else, I don’t know how much it will raise my sugar, so then usually my sugar is way too high at that point then.

Long Days, Late Nights, No Sleep

Last week was filled with a lot of work, I mean a lot of work for me.  I have been working on continuing to re-design this blog because to me it just doesn’t seem right.  Is it easy for you to read, anything distracting you, or fonts too difficult to read?  Along with that blog I have been working on a re-design on the other blog that I write about internet marketing and social media, Chris Stocker, Inc.  I have also been updating the Facebook accounts I have, and my LinkedIn, and Flickr, and about 10 other things including designing a website for my new company, CSI Marketing Solutions, LLC.  I also recently read Crush It by Gary Vaynerchuck, which if you want to get things and not sleep for about a week, I recommend that book.

With all of this work, and it’s not been completed yet, I foresee the same thing going on this week as well.  Last week from Monday-Friday I slept, in total, about 15 hours.  I was going to bed at 3:30 and waking up at 6:30 and getting back at it for an hour before I would begin getting ready for work.  See I work a 9-5, and run a business and do contract work on the side so I need about 8-10 hours a day to do that.  Then there is the 2 blogs that I write on a daily basis which adds about another 10 hours a week.  So, adding that up, we’re looking at around 20 hours of work a day, and no time for sleep.  This picture pretty much sums up my week last week.Coffee and SF Red Bull

Typically, the later I stay up, the more my blood sugars go up.  It’s basically a hand in hand thing.  I tend to start eating snacks in the middle of the night as well because I am up later and getting hungry and need to eat something.  I told myself last week that I am not going to let this happen, if I’m staying up later, I will make sure my sugars don’t go crazy.  I have done a pretty damn good job of it.  Throughout the nights my sugar didn’t really go over 200 maybe once or twice.  Here is a breakdown of my morning sugars this past week (my best ever):

Monday – 112

Tuesday – 88

Wednesday – 94

Thursday – 104

Friday – 125

Friday night however ended up being a different story.  My sugar, after being great in the morning, just shot up all day long and didn’t come back down.  It was on average about 325, with a high of 496.  I went to the movies to see Saw VI and I went to the bathroom when I got there and then I usually will go right before the movie starts so I don’t miss any of the movie.  So, I went as soon as the previews started but when I came back I told Amanda that I feel like I already have to go again.  I just thought that maybe my jeans were a little too tight and they were pushing in on my bladder, because that sometimes happens if I’m wearing a pair of jeans that don’t fit me the best.  About halfway through the movie I just had to go again, I couldn’t hold it any longer.  And for those of you that know the Saw movies, you know you can’t miss a second, because something is going to happen.  I literally ran out to the bathroom and ran back within about 20 seconds and didn’t miss anything.  As soon as the movie was over, I had to go again.sawVi

When we got out to the car I tested and that’s when I was at 496.  I was about to correct, but I knew that it was a bad site, so putting more insulin into it wasn’t going to do a damn thing.  I took just a little bit just so it wouldn’t go any higher, I knew it wouldn’t bring it down, but I was just trying to eliminate an even higher number.  Once we got home I took out the old site and was getting the stuff together to put in a new one.  Well guess what, I couldn’t find the pretty blue insertion device to put in the infusion set.  Finally after digging through my room Amanda found it, in the first place that I looked.  In the morning when I woke up my sugar was down to 185, so it went down.  Saturday was a little of the same story, high all day long, but not as high, this was in the mid 200’s.  So, I wasn’t sure what was going on.

Throughout the daytime hours my sugars aren’t going all over the place either.  Even with drinking about 4-5 cups of coffee and drinking at least 1 energy drink, sometimes 2 a day are not affecting my sugars. The coffee usually does, but energy drinks don’t ever make a difference on my sugar levels.  I know that the sleep deprivation is not good for me, but I don’t plan on doing it for a while, just until I get this work finished and everything is up and running.  I just fear that when I am done with the work and want to go to bed early, I’m not going to be able to because I will be so used to staying up later.

We shall see.

My 6th Birthday with Diabetes, 25th Altogether

Today is my birthday and it can turn out to be potentially one of the best birthdays that I ever had.  Reasons are simple, it is an all day New York – Philadelphia day.  At 1 p.m. the Eagles have a huge NFC East match up against the Giants and then at night it is game 4 of the World Series with the Phillies and the Yankees.  Do you think my stress level is going to be high?  I’m not even sure exactly what it is going all day during my birthday because of all the sports, I think it may include a cookout between the games, but not sure.  This is my 25th birthday (yes, I can now legally rent a car and my car insurance rates should go down), and it is the 6th birthday that I have celebrated with diabetes.

My birthday’s haven’t really changed at all since I have been diagnosed.  There is really only one thing that I require for my Brian and Chris_Halloween2birthday, call it high maintenance if you will, but I must have an ice cream cake because the greatest thing in the world is the little chocolate crusty things in the middle layer of the cake.  I get to eat that about once a year, so it’s allowable on my birthday.  My birthday gifts have changed a bit from family members however.  Now when mom and pops ask what I want for my birthday this year, I usually respond with, “How about picking up the costs of my insulin for this 3 month supply.”  That’s usually what the gift is now.  And I am more appreciative of that gift then I am for any other gift out there.

I didn’t get a chance to post any pictures from our company Halloween party from Friday, so here are just a few.  This is my buddy Brian, whChris and 800 lb gorilla_Halloweeno writes one hell of a blog about baseball and baseball cards, dressed up as one of the Disney Imagination Movers and then another with the proverbial 800 pound gorilla that we are all up against half the time in life.  I’m dressed up as a low budget Chase Utley (I have a man-crush on him).  This is also the same thing that I was last year..  I didn’t do any Halloween parties or do anything related to it this year because the Phillies were playing game 3 last night.  I was doing a little “trick – or – Tweeting” though however.

So today is not only my birthday, but also the first day of National Diabetes Month.  It’s also a bunch of other things, but I don’t feel like talking about that stuff.  Start today with spreading awareness.  Tell one person starting today about diabetes, almost like a Pay-it-Forward style.  Do your part, if we all do ours we can create a big movement.  Don’t just do it on November 14 on World Diabetes Day, make it the whole damn month!

Have a great Sunday ya’ll

Is Diabetes a Disability?

Here’s a question for you: Is diabetes a disability?  This question came up while I was reading an article in the October issue of Diabetes Forecast.  There is an article titled, “Cracking the Case.”  Long story short, Jeff Kapche was denied a position at the FBI because of his diabetes.  He filed suit against them stating that they didn’t hire him because of his diabetes.  The FBI said that his diabetes is not a disability because he manages his diabetes well.  The court favored Kapche.  The case is still is heading back to the Federal Court of Appeals for another review.

There is no easy answer to this question, it may seem like there is, but there isn’t.  Let’s look at it from all sides.

Diabetes IS a disability

When you have diabetes(type 1) there are certain things that you must do in order to live a healthy life.  You must check your blood sugar, take insulin whether it is from an insulin pump or syringe, be able to have access to glucose in case of an emergency and many more things that we don’t have to get into at this time.  This can definitely hinder your processes of doing normal day to day or daily job tasks.  If you are working an extremely physical job then your blood sugar is more likely to drop faster, so this is where diabetes can be considered a disability.

Diabetes IS NOT a Disability

Even with all of the things that you need to do in order to properly manage your diabetes, they do not have to hinder your daily life or your day to day tasks.  If you are doing the things that you need to be doing, then you can control your diabetes which does not allow it to become a disability.  Whether you are wearing an insulin pump or taking multiple day injections (MDI), you can control your levels.

My 2 Cents

Here’s my 2 cents.  Diabetes is in no way a disability.  I live a normal life, I just so happen to be diabetic.  In the 6 years that I have had diabetes there has not been one single time that I have had to say, “no I can’t do that because I have diabetes.”  I eat ice cream cake for birthdays, I ride roller coasters that go upside down(Manta @SeaWorld)Manta_SeaWorld while wearing a pump hooked to my hip, I test my blood sugar at the table, at the desk, in the bathroom, at work, at the dinner table, I do everything someone without diabetes does, but more!  I don’t see diabetes in any way being a disability.  With proper management, you can control it.  A disability to me is something that you can’t control.

I think using diabetes as a disability is a scape goat for a lawsuit. Sure, there may be a reason that you don’t get a job because of diabetes, but that is a discrimination, primarily based upon ignorance and the cost of your health to the company hiring you.  So, if you are going to file a suit against somebody for discriminating against your diabetes it should be because you are defending that it isn’t a disability and that you are able to do the job just the same as someone without diabetes.  Instead, the guy in this article is fighting the FBI and saying that he was denied the job because he DOES have a disability and the FBI is claiming that his diabetes is not a disability.

This irritates me.  To think that the ADA is doing a 2 1/2 page article in their magazine talking about how diabetes is a disability.  What kind of negative thinking is that?  Not the kind that I want to think about.  How about they write articles about how it’s not a disability, but people’s pure ignorance to think that we can’t do something just because we have diabetes.  I don’t know.  But what I do know is that I’m not going to have an organization that is supposed to be furthering advocacy for the disease I live with, start to take steps backwards.

If you want to accept diabetes as a disability, then be my guest.  That’s your life decision.  But I’m not going to let this damn thing hold me down!

I would love to hear ya’ll feedback.

Diabetes Aside, What Do You Do?

What do you do?  I know that the number one thing that majority of us have in common is that we all have diabetes, or know somebody with diabetes.  But I want to know a little more.  What do you do, what is your passion?  What do you do for a living?  How many children do you have?  What do you do for fun, what are your hobbies?  I know some of this stuff about some of you, but I’d like to know more about more of you.  So, if you feel comfortable, please comment what it is that you, or what your passion is.  Put diabetes to the side and let’s know the rest of us.

Here’s a little about me.  I am an internet marketer.  I love the internet and geeky computer things.  I love social media, I love SEO.  I love blogging.  Currently I also coach a pop warner (12-14 yr old) football team in East Boca.  We are having a rough season.  The kids are 0-8, a real life version of the Little Giants, especially since our name is the Giants.  I have a girlfriend, Amanda, that I have been with for 4 years.  I do plan on marrying her, just isn’t the right time to make that move yet.  I moved down to south Florida from PA, where the rest of my family still lives.  My direct family consists of my mother and father who both turned 50 this year.  And one brother who turned 29 in September.  His wife is expecting their first child in just a few weeks.  I am extremely excited to become an uncle.

I enjoy watching football, Philadelphia Eagles, baseball, Philadelphia Phillies, hockey, Florida Panthers, basketball, Orlando Magic, and NCAA football, Virginia Tech and NCAA basketball, Michigan State.  Yes, I know my sports teams are all over the place, but there is a reason for each of them.  If you’re curious, here we go.  I like Orlando Magic because I became a fan when they signed Shaq back in 1992-93 and stayed a fan since then.  Virginia Tech became my team when a local high school QB went there in 1995 to play there.  Phillies and Eagles, I’m from the Philly area.  Michigan State came from their freshman point guard in 1996, Mateen Cleaves.

That is about it.  That sums up most of my life.  If you have other questions, I am open to answer them.  I look forward to seeing your stories as well.

Took a Little Break, Except from Diabetes

Last week I decided to take some time off from Twitter, Facebook, blogging and every other online outlet for 4-5 days.  I had a lot of things coming up and just needed a break.  It’s now time to get back to work however and catch back up, which is harder than actually doing the work in the first place.  I needed to get some offline things done, it’s crazy that theirs actually an offline life out there.  You know, all the fun stuff plus the diabetes stuff.  The life of a diabetic always consists of making sure you have the essentials.  Since I am type 1, I had to make sure that I had enough insulin in my pump before I went to do all of the fun events thisweekend because there is nothing worse than going out somewhere and not having enough insulin.

Friday night after work I headed down to the Panthers game for their exciting win over the Flyers.  It was a stressful event for me.  The Phillies started at 4:00 p.m on Friday, so I was wearing my Chase Utley jersey all day long and had Amanda drive down to the BankAtlantic Center so I could pay attention to the game on my phone.  When I got to the arena, I had to take the Phillies shirt off because the Panthers were playing a Philly team (Flyers), so I was in a little predicament.  Ultimately, the Phillies lost and the Panthers won.  During the game I decided to get some nachos, so I bolused for them and chowed down.  After eating them I started to feel a little low in the middle of the period, so Amanda went out and bought me a huge $4.00 chocolate chip cookie.  I didn’t test to see how low my sugar was because of course my meter was out in the car.  Finally, I felt better and my sugar was about 160 after the game.

As soon as the game was over, Amanda and I went to Super Wal-Mart because I had to get all the fixings for pasta salad (my favorite food in the world).  Saturday was my future father in-law’s birthday party for his 60th birthday, which is actually today.  My roommate (my girlfriend’s brother) and I decided to get a keg for the party because there was going to be a good amount of people there.  But that wasn’t the main reason for the keg.  We knew that the Oklahoma – Texas, Gators – Razorbacks, Virginia Tech – Georgia Tech, and the Yankees games were all on Saturday, so we knew there was a lot of beer to go through for the day.  I’m not even going to get into Virginia Tech blowing any chance that they have to play for the national championships.   At the party I didn’t have my meter again, starting to be a not so good recurring theme here.  I was eating a lot of pasta salad, macaroni salad, beer, chicken tenders and mini subs.  So a lot of insulin wasb eing consumed there.  When I went home I tested and I was near the low 200’s, which is where I stayed pretty much all night long.

And to top it off the Eagles barely outscored the Phillies on Sunday.  The Eagles game did have my stress levels at a high so far this season because they have been playing well so it hasn’t affected me too much.  Since my meter was left in my car, surprise surprise, I had no idea what my sugar was.  All I knew was that I didn’t feel dizzy and I didn’t have to pee a lot so I knew I wasn’t at either extreme.  I know this isn’t good because sometimes I am just dehydrated and drinking a lot because I was sweating so much.  Sometimes I will take some insulin because of that, which is not a good idea, so don’t try that at home kids.  But at the end of the night the Phils win at least made it a little better.

Last night after work I had to coach a game which was the best game all season so far.  It was a 12-6 loss for my kids that have been averaging about 21-0 losses.  Then at night, Mr. Jimmy Rollins rocked Philly with a walk-off double, which sent me running and screaming around my house at about midnight, waking up my roommate who is cheering for the Dodgers.