Speaking with Children with Type 1 Diabetes
Over the weekend, on Saturday, I had the opportunity to speak to a group of parents and children with Type 1 at the PEP Mini Conference by the DRI Foundation. PEP stands for Parents Empowering Parents. This is a wonderful group because when a child is newly diagnosed, these parents reach out to the new parents and let them know that they can do the things that are going to be needed in order to help their child manage their diabetes.
I was asked to break off into a small little group with the teens and just have some sort of conversation with them. I was joined by Patti Sinkoe, M.S. We ended up talking about some of the things that may bother or frustrate them. One of the most common examples given was that they don’t like being asked “Did you test your blood sugar?”over and over and over. But, as us adults with Type 1 know, those questions will continue to be asked. We worked on providing recommendations to the parents on how they could ask that question a little better. For example, “What is your blood sugar?” because that at least implies that they trusted in you to have already tested.
Dr. Wendy Satin Rapaport, who is a clinical psychologist, was there, and damn was she great. Having a psychologist at a meeting like this is extremely helpful because people have questions, and some times people may be scared to go and see a psychologist.
Finally, at the end of the event, I was able to speak with some parents and introduce them to DSMA and DSMA Live ‘Rents talk. Hopefully we will see some of them participating on DSMA soon enough.
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