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Our First JDRF One Walk as a Family with Diabetes (1)

Our First JDRF One Walk as a Family with Diabetes

When we first learned about the local JDRF walk being close enough to us to attend, we knew that we were going to do it. We told our daughter and she was so excited. It was almost like a holiday for her.

She got her calendar and marked it down and started to count down the days to it. Perfect math lesson at the same time!

My wife and I have done 10-15 JDRF, ADA, and DRI walks over the years, but this was the first one with two people with diabetes in the family.

JDRF One Walk Allentown PA

Our daughter is super proud to have diabetes. At least at this age, she wears it as a badge of honor and thinks it’s cool to have diabetes. So, when we get to do things that are diabetes focused, she is that much more excited about it because it’s a special club that you have to be a part of.

This walk was in Allentown, PA. It was outside at the PPL Center which is where the Lehigh Valley Phantoms play hockey (affiliate of Philadelphia Flyers). We have not spent much time in the downtown Allentown area, so I was not too familiar with the area and the parking was confusing, so I thought we were going to be late….luckily, we weren’t.

It was a pretty cold day too. I hate doing physical activities in the cold because you never know how to dress. You have to dress warm, but at the same time you are going to be sweating and it’s just a confusing situation for me!

We also had a 4 month old baby that was going to be in the stroller the whole time, so we had to make sure she was bundled up and going to stay warm as well.

More than One T1D in the Family

I have mentioned before in my posts that my niece also has type 1 diabetes. She was diagnosed several years ago, so when there are local diabetes related events, we tend to also meet up with my brother and his wife and kids. For this event, we did the same thing. We also met up with my parents to have a total of 10 (plus a 4 month old in a stroller).

We were rolling in #STOCKERSTRONG

Register for T-Shirts

The first part of any walk is to register. You have to make sure you get those free t-shirts at registration. They had some other pretty cool SWAG as well. They had face covers, which are coming in handy now (writing this during COVID19 pandemic).

Honestly, I have given so many diabetes related t-shirts to Goodwill that I didn’t want another shirt. My daughter was so excited to get a diabetes shirt and she wanted it on right away. This goes back to her wearing her diabetes like a badge of honor.

It makes me so proud to know that she embraces the disease and although I know she is still young and naive, it’s a good start.

She still wears that shirt as pajamas all the time. When she is in charge of grabbing her own pajamas, it is definitely one of her favorites. We typically end up reading either Coco, Rufus, Year One with Type One or Open Up Your Bag or another diabetes book.

This is a bit of a side story, but when my daughter asked what Find a Cure meant on the shirt and my wife explained it to her, she was confused as to why they wanted to find a cure.

Our, then 4 year old responded with “but if they cured diabetes, then I wouldn’t have it anymore and I love my diabetes.”

Our, then 4 year old responded with “but if they cured diabetes, then I wouldn’t have it anymore and I love my diabetes.” Click To Tweet

Stock Up on Snacks

Now, my favorite part of these walks is the free food. I’m not afraid to admit it! Unfortunately, this walk did not have a lot of sponsors, which I don’t understand. There were no food sponsors. Just apples, granola bars, chips and drinks.

We stocked up on some of those supplies for the 5K we were about to walk. Everyone needs a little bit of a snack along the way, so it’s good to have these things at the beginning of the walk.

Some of the JDRF walks we have done in the past, specifically the ones in Boca Raton, FL are loaded with food. Pizza, hoagies, cookies, and other random samples of goodies were a staple and the best part of finishing the walk.

3 – 2 – 1 – Walk

It was finally time to walk. After a few speeches from local leaders and JDRF employees, the music started for us to walk.

I honestly thought the walk was only 1 mile down and 1 mile back, but I was wrong. It was actually 5k.

Our daughter was super excited when we started to walk. She was walking with her cousins and couldn’t be more proud to be walking in something that was all about her.

The walk was packed. It didn’t seem like it when we were at the starting line, but as we started walking, my nerves started going crazy, as they do in any large crowd. I am constantly concerned about knowing exactly where my kids are and being able to see them at all times. So, when my daughter was super excited to start walking, she didn’t really care about the rules of staying close to mommy or daddy.

It was all good though.

Snacking During the Walk

When we started to reach the halfway point of the walk…which we knew was the halfway point because we saw people turning around to start walking back…our daughter wanted a snack. Of course she chose the chips, but hey whatever, she’s exercising, it’s fine.

We checked her Dexcom and gave her a bolus for the snack because she was trending a little higher. We waited only about 5 minutes because we knew the activity of already walking a 2.5k that she was going to start trending down.

Walk Over, Trend Down

And that is exactly what happened. As we were approaching the end, she started to go straight down on her Dexcom, so we decided to give her a juice to correct that.

All the excitement that she was having was going to end up sending her low too. We also knew that we were planning on going to a pumpkin patch after the walk, so we wanted to make sure that she had enough glucose in her to prevent lows happening in the near future..

The walk was a lot of fun. Our daughter had fun and so did the rest of the family. I love being able to share these type of fun experiences with my daughter and family.

2019 speaking opportunities featured image

2019 Speaking Opportunities

One of my goals for 2019 is to speak at a few events. Believe it or not, I am actually a pretty shy person. I don’t do well, talking to others. However, once I start talking about something that I am passionate about, I can talk forever.

I heard somewhere recently, it was a stand up comedy show that the fear of public speaking is larger than the fear of death. So as the comedian said, you would rather be in the casket than to give the eulogy.

The only way to get rid of a fear is to attack it head on.

So, that’s why I want to pursue for a speaking opportunities this year. I would love to speak at small, local diabetes events, JDRF events, or even be part of a panel to start.

If you are reading this post and you are in charge of booking speakers for diabetes events, then let’s chat.

ADA Walk in Allentown PA

Late last week my wife and I had to make the decision on whether or not we were going to evacuate our home in south Florida or stick out the storm. When we made our decision the path of the hurricane was not looking good. We knew that we wouldn’t be directly hit, but felt that we would get enough of the storm that it would make us lose power. And we did not want to lose power with an 18 month old.

So, we decided that we were going to evacuate. We thought about just making the short drive to Orlando for the weekend, but they were bracing for the storm themselves, so we had to go even further west or further north, so of course, we chose north since it’s where I’m from.

We made the drive north to PA and made it by Thursday morning. I was told by my mom that my brother was going to a diabetes walk on Saturday for my niece. I found out that the local ADA Step Out walk was going to be taking place at Coca-Cola Stadium in Allentown, PA, the home of the Lehigh Valley Iron Pigs (Phillies Triple A Affiliate).

This was the first diabetes walk that I was attending that I wasn’t the only person with diabetes that was walking. Typically, it is just me and the walk is about myself. This time, I was sharing the honor with my niece, but was mainly about her. I’ve done my share of walks and I think that they can be a lot of fun for kids, especially when they see other kids running around with an insulin pump or CGM.

kendall-simmons-chris-stockerSpeaking at the event was Kendall Simmons, who has partnered with Novo Nordisk to share his story. I’ve met Kendall in the past and have also interviewed the Super Bowl champion. When I met him again on Saturday, I wanted to check out the Super Bowl rings again. Primarily because I am an Eagles fan and I never know when or if I will ever see one.

During the walk there were a bunch of signs along the path that had a red hand and a picture of someone with diabetes. While we were walking through, my niece kept saying everyone’s name and looking at the picture and then bam…. “Hey, that one is me!”

My sister-in-law was able to get my niece’s picture and name and a special note on one of the signs. She was so happy and excited to see her face there. As people walked by they were cheering and clapping for her because of her excited look.

This was one of those good diabetes moments. Seeing someone so excited to see their picture, even though it’s diabetes related, it makes it exciting and not just the constant negative vibe that diabetes gives out.

What I Learned from World Diabetes Day

World Diabetes Day was a very long and tiresome day for me this year. I normally don’t really do anything to celebrate the day, I used to use it as a vacation day from everything I do with diabetes. Last year I participated actively for about 6-7 hours of the World Diabetes Day Chat, but this year, my goal was to break the record, in fact I wanted to actively participate in the entire event.

And I did.

Throughout the 13,14, 15 hours ( I don’t even know how long it was), I attempted to answer every question asked by every moderator. There were a couple of reasons why I did this. First, because I wanted to motivate someone to do something. I was hoping just one person would say to themselves, “if he’s been tweeting all day, I can find 5 minutes to send an email to my local reps.” Secondly, I wanted to show people that we all have time. I know we all live busy lives, but if you audit your day, you can find some time to do more advocacy related things that you feel like you don’t have the time to do. And lastly, I wanted to get a better understanding and feeling for how the DOC felt towards all of the topics that were being discussed.

So, what did I learn during this all day chat? A lot.

I learned that the DOC comes together like a boss. I learned that even when there were disagreements about certain things, there was still a common goal in the end, just maybe the paths were a little different. I learned that there are a lot of people that want to help and do more, but just don’t know they can do. I also learned that when we come together as a community like we did on Saturday, our voices are heard a hell of a lot louder than when we are just individuals shouting.

I learned how I can advocate better and how I can do things differently to better manage my own diabetes. I also learned that it’s very easy for your words to be taken out of context in just one tweet (well, I guess I already knew that).

What did you learn from the World Diabetes Day Chat? Comment below.