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Help the International Diabetes Federation Create a Diabetes Outrage

Before going to the Roche Social Media Summit 2011, there were groups and organizations and projects that I had heard about, but did not know a lot about.  One organization that I was aware of and some of the things that they were doing, primarily World Diabetes Day, but other than that, there was not much else.  The first IDF presentation that was given at the #dsummit by Isabella Platon, the Head of Communications for the International Diabetes Federation. I was not very impressed with at all.  I feel very disconnected with the IDF, and I do not like that.  I believe that it was Scott Johnson who brought up the same point and even brought this issue up during the Q&A session.  I just don’t think that the IDF was prepared for what they were going to get from the #dsummit crew.  Unfortunately, not all companies get social media, and the IDF is not there yet, but I think that we can work with them to help them “get it”.

Another item that was brought up during the initial IDF session was about the idea of getting the blue circle out to the public more and get more awareness and understanding of what this blue circle thing is.  Isabella spoke about a process that needs to be taken to go through all of the companies that would like to partner with them to do this, such as the cola companies of the world and companies that make processed foods and that the IDF does not want their symbol on those items.  I do not agree, at all.  Why would we NOT want to put that blue circle on let’s say a Pepsi can?  If somebody is drinking a lot of Pepsi and eating a lot of processed foods that are not good for you, don’t you think it is a good idea to have that blue circle on there that gives them an awareness of diabetes and that possibly be at risk for diabetes.  I think that this is a great idea, and I think that they should not have such strict standards.  IDF is not sponsoring them, they are sponsoring IDF.  Anybody agree / disagree?

International Diabetes Federation PresidentThen came dinner on Thursday night and my entire perception of the IDF changed.  Not only that, but I was more motivated at that point then any other time in my life.  I don’t even know exactly where to begin.  We were told that the President of the IDF would be attempting to swing by and say hello.  Well, did he ever stop by and say hello…..and more.

Jean Claude Mbanya walked around the room and introduced himself while we were all eating and then he took over the room to just give us a quick talk.  I could not take any notes during this time because I was so focused on exactly what he was saying, so I will leave the statistics that he spoke about to some of the others bloggers.  What I want to focus on, and I think everybody that was at this event will be focusing on, and I hope that everybody who is reading this will be focused on as well, is creating a noise, a buzz, a loud ass constant OUTRAGE about diabetes.  I’m talking about the outrage that you see from people fighting for AIDS policies, handcuffing themselves to a pole out front of an elected officials office (try not to get arrested).   But this is the only way that our voices will truly be heard in the masses.  Blogging and social media is only one part of this situation, we have to continue this battle online, but also take this offline.  I am now starting to get into something totally different that I will be discussing later on in the week, which by the way, this will be a 5-7 part series of blog posts that all discuss the Roche Social Media Summit.

Jean Claude Mbanya was very motivational when speaking on stories about how children in small villages in Africa do not have access to medications and insulin and die just because they are born in the wrong area of the world.  There are also areas within the United States that put you at a disadvantage just because you were born there.  There is an upcoming United Nations meeting coming up later this year and diabetes is not even on their radar.  From now until then, we have to put diabetes on the radar.  If I am not mistaken, I believe that Roche Social Summit team would be more than willing to help with who we can contact in regards to this.

Here is one of my goals.  I want us to be able to get diabetes on the radar.  I have done some fact checking, but you can do more and I will be more than happy to update this section of the post with a correction, but I do not believe that our President is making diabetes an issue with the UN, bad mistake.

Who is in?  Who’s ready to make some more noise and get crazy and wild and loud about this diabetes stuff.

Please take an additional 2 minutes and watch this video and please pass along:

 

 

Schedule of Roche Social Media Summit Posts

Some of you may have been aware that last week I was at the Roche Social Media Summit in San Diego, CA (Hashtag #dsummit).  For those of you that were there, I look forward to reading all of your follow up posts, please tag your blog posts with the hashtags so we can read them all.  To those that were not there, I hope that you were able to follow along with everyone on Twitter.  I think that next year there will be more of a focus on getting a better quality and less lag streaming video of the event.

I am going to try my best to cover as many as the topics that were discussed as I can.  I plan on doing a week long, 5-7 part series about this.  Here is the schedule:

Tuesday – International Diabetes Federation

Wednesday – Jeffrey Brewer, President JDRF

Thursday – Dan Kane, VP Marketing Roche

Friday – Glucose Getaway, Dr. Polonsky

Saturday – Relationship Building with DOC

Sunday – Taking the “O” Out of DOC

Monday – FDA Discussions

I am trying to type most of these posts while I am flying back from San Diego to Atlanta for a connecting flight, so it is a good 6 hours to allow me to write, write, and write some more.  It is becoming difficult though because I think Roche made a mistake, they booked me a first class flight.  I have never flown first class before, so I was actually a little nervous at first because I didn’t know what to expect.  But, I do see that my perception of the people who fly first class is still the same, bunch of arrogant pricks.  There are a few that aren’t because they probably don’t fly first class all the time, like me.  I just wonder what they do.  Anyway, getting side tracked, but they also have free drinks, food, and movies.  I just finished watching Cedar Rapids (not so good) and am currently watching The Dilemma, so I am becoming distracted.

Sorry, I got off subject there for a while. But I hope that you all come back throughout the week because I have a lot of things that I think you will like. Some great ideas were brought up at the #dsummit and some new projects that we need to start working on like yesterday, so let’s get to it!

 

Why Do We Still Need to Code These Days?

I have tweeted and posted a few times lately that I am switching back to the One Touch Ultra strips from my Freestyle Lite strips because the insurance company is charging 6 times the amount, $25 as opposed to $150.  I had an older One Touch Ultra Link meter from about 3 years ago that I had used a few times, but of course the battery was dead in it when I went to use it.  I was looking all over my house because I knew I had to have had another One Touch meter somewhere around the house.  And then I found it.

One Touch Ultra MiniThis nice, small, convenient blue One Touch Ultra Mini meter.  I was all excited and ripped open a vial of strips and stuck it in and pricked my finger and put my blood on the strip and….. nothing happened.  Hmm, what is going on here, does this meter not work also?  Oh, I know, I have never set it up, so maybe I just have to put the date in it.  So I start going through the numbers and I stop at 6 because it is June ya know.  Then it shows me flashing lines which means insert blood onto strip. WTF is going on here?

OOOOHhhhhhhhhh yeaaahhhh. The One Touch Ultra strips still require coding!  I had been using Freestyle Lite for so damn long, that I totally forgot that there was even such a thing as coding.  I hate coding, why do I have to code my machine?  Why can’t I just stick a strip in, insert blood, and bam, it reads my blood sugar?

 

One Touch Ultra Strips Ordered

I mentioned previously that I was switching to One Touch Ultra test strips instead of using the Freestyle Lite strips.  The reason is that Medco changed the Freestyle Lite to a tier 3 which is $150 for a 90 day supply, as opposed to One Touch Ultra’s which are only $25 for a 90 day supply.  I called the pharmacy today to see what I had to do in order to get the new strips ordered.  It seemed like it would be an easy process.  The customer service rep was very nice and helpful, so thank you for that, because unfortunately there are a lot of bad diabetes companies out there, trust me I worked for one for 3 1/2 years 🙂

There was one small issue, there was a limit of 6 boxes of 100.  Well I test 8-10 times a day, thats 240-300 a month, so that’s about 900 strips for 90 days, the math doesn’t add up.  The customer service rep explained that my doctor can override this, it will just be an additional step.  Well, about 30 minutes later, I had a phone call from the doctor, that they called in the prescription and that they also requested the 900 strips as opposed to the 600 limit.  It is so great to have not only a doctor that cares, but a doctor that lives with type 1 diabetes and uses an insulin pump herself.

Well, just like the other night, the Miami Heat and Mavs game is on, so that is it for tonight’s post.  Plus I just got done with a Twitter #seochat tonight.  If you like search engine optimization, I suggest you tune into this weekly chat on Thursday night.

Booked for Roche Social Summit

Unfortunately, I have gone through one of those stages where I haven’t been online at all.  No blog posts, no tweets, no Facebook updates, nothing.  I hate when I go through these time periods, but sometimes it just gets tough to fit all this stuff into the schedule.  I have so much that I want to blog about and talk about, but just wish I had a little more time in the day to do it all, don’t we all though?

Onto other things, I finally got my travel schedule booked for the Roche Summit.  I am excited and can’t wait to meet all of you who are going.  Unfortunately, I have to cut out a little early on Friday because of the time of my flight.  I have never been to San Diego, so I look forward to seeing part of the city.  I’m still pissed at Budget car rental for screwing up my plans last night by not allowing me to rent a car to get to the Roche Social Media Summit.  Guess what Budget, you can’t stop me this year!

Well, this may be one reason why I haven’t had much of a chance to blog or tweet as much.  My dog needs to go to the bathroom and the Heat- Mavs game is on, so it’s off to watch that.

Have a great night everyone!