I have been wanting to attend the AADE conference for about 5-6 years now and I just haven’t been able to attend. This will be my first major conference that I will be attending as “Media” When I attended Scientific Sessions and Friends for Life (once a piece) it was as a vendor for a company that I used to work for.
One of the many reasons that I started my own company was so that I would have the freedom to attend these conferences and not have to worry about having the time off of work. Unfortunately, during that same time period and building a business, I haven’t had the financial freedom to attend these conferences.
Since AADE is in Orlando, I am just a quick 2.5 hour drive away and don’t need to worry about a round trip airline ticket which saves me a lot of money, however, the hotel is still an extra $300-400 that needs to be budgeted for. I decided last year that I will be attending this year’s AADE and I just kept putting a little money aside every month in order to know that I would be able to attend.
I highly recommend this to anybody that has interest in attending diabetes conferences.
Who all is going to AADE? I’d love to meet up with as many of you that I can. Orlando is basically my home, away from home (away from home, since I technically still consider PA my home), so if you need any tips for places to eat at or see, let me know.
My saga with OptumRX is over, at least for this go round. As my previous post mentioned, I’ve had a very difficult time getting my insulin re-order. As an update to the previous post, I have received all the insulin that is needed.
I ran out of insulin and needed to go Target in order to fill my retail prescription because the mail order did not ship in time. I decided I would pay the $100 deductible because I needed the insulin, however when I went to pick it up, they couldn’t process the order because it said I just had the mail order filled.
If you’re getting confused, sorry, but this is how it went down. The pharmacist had to call in for an override which took another 15 minutes.
Finally, I had my insulin from Target which is a one month supply, now I just needed my 90 day supply delivered.
I did not get the delivery the next day, so I called and the RX was still being processed which I don’t understand how it takes that long when I had a RX on file, but just ran out of refills. And why does insulin need refill limits anyway, it’s not like I’m going to stop using it any time soon, but that’s a different story for a different time.
I received my delivery of insulin yesterday so I am good to go for insulin for the next 4 months. Which means hopefully I won’t have to deal with Optum for another 4 months.
Over the last 12 months I have had a mail order get delivered to wrong address, test strip order be delivered with half of the 3 month supply damaged and the test strips on the bottom of the bag, this fiasco, Humulin N delivered instead of Humalog.
And that has all been with OptumRX. To say that they are probably the worst mail order pharmacy is an easy choice.
As I’ve mentioned, I have been spending the last month up here in Pennsylvania. I initially thought that I could wait until I got back to Florida to order my insulin, but that didn’t work out. So on Thursday evening I called to re order my insulin….but there were not any refills left.
Well here is the first issue. After my last visit to the endo they faxed prescriptions for test strips and insulin, so how is there 2 strip refills left but no insulin? That didnt make any sense to me but no worries let’s move on.
It was late on Thursday so my doc office was closed so I had to wait until Friday morning to get the renewed RX sent in.
I was running low on insulin so I figured that I would request the RX to be sent to a local retail pharmacy so that I can pick it up on Friday or maybe Saturday since Optum wouldn’t deliver it until Monday.
When I went to the retail pharmacy they told me they didn’t have enough to fill the order so there wouldn’t be enough until Monday.
Ok still no worries because I have enough until then.
So yesterday I went to the retail pharmacy to pick up my one into insulin order finally and she said, “ok that will be $110″
Huh, excuse me? $110 that’s supposed to be $10 or $30 at most. Apparently there is a $100 deductible on retail pharmacy prescription but not mail order. Well, there’s no way I was paying $110 for one month because I don’t ever use retail so that $100 will just be a waste.
Ok now it’s getting time to worry.
I called in to Optum RX to get the mail order filled instead of the retail and only need to pay the $25 for 90 days like usual.
I know that Optum RX has a 24 hour order processing policy but really, how long does it take to process an insulin order.
Well as I’m sure you guessed the order didn’t process and ship yesterday so now it will ship today and won’t be delivered until tomorrow.
So now I have a 90 day supply coming to me tomorrow but I don’t have enough insulin to get me by till tomorrow so I asked if there was a way to get one vial of insulin to get me through till tomorrow.
Their answer… Yes you can pick up the vial from the retail pharmacy and we will grant an override but you will need to pay the $100 deductible. Well thank you very much but that doesn’t help me at all because that’s what started this whole damn thing.
This is just ridiculous. I know it’s the policy and I know it’s the rules but I do not use retail and will not the rest of the year but I need to pay the $100 deductible for 24 hours of insulin.
I am fortunate enough to be able to pay the $100 deductible because I have no choice but what if I didn’t. What if I couldn’t afford the deductible, how would I get my insulin? That one emergency vial of insulin is a hell of a lot cheaper than the trip to the ER that it will cause.
I am being charged $25 for 16 vials of insulin but I need to pay $110 for one emergency vial?
I have been with UHC and Optum for well over a year and they can see that I haven’t filled any retail RX so it’s not like I am trying to get over on them some how.
At the end of the day I am grateful to have the insurance and only needing to pay the little amount that I do. I went 2 years with no health insurance so I know the feeling of spending $100 for just one vial, but this is why I pay several hundred a month for insurance.
Something needs to change for emergency situations.
For the last few weeks I have been visiting my family in Pennsylvania. This is where my diabetes all started 10 years ago when I was diagnosed before moving to Florida. This trip is part of my summer work-cation since my wife is a teacher and I can work from anywhere with wi-fi. I normally come to PA for only a week at a time but this is the longest time period that I’ve spent up here in 10 years.
Before leaving for the trip, it took me a while to make sure that I had all the supplies that I needed. I also made sure that I set calendar reminders for any refills that I will need because when I’m up here with friends and family, the memory tends to slip because there is so much fun stuff going on.
Since I’ve been home, I’ve still been wearing my Medtronic 530G because I am finishing up my trial with them. I have not been very good with wearing my sensor however. When I take the sensor off, I have been taking a 3-4 day break in between instead of putting it right back on. I have also been taking a day break in between each infusion set change because I just need that break.
As I mentioned yesterday, I have been going through a burnout phase where I just couldn’t take anything additional diabetes related other than my daily management, and even that was becoming annoying. Since my large weight gain over the last 2 years, infusion sets just fall off like nothing, so it has become very annoying that I go through 4-5 infusion sets a week at times. Taking the day off in between changes has really made that feeling go away and helps me deal with an infusion set falling off if it does.
All in all, I am happy with my diabetes management in Pennsylvania. I typically eat out all the time and at a lot of unhealthy places so my sugars are all over the place. This trip has not been so bad.
Unfortunately, the trip is almost over and it’s back to Florida.
The last couple of months have gone by quick. It feels like the last 90 days has been about 2-3 weeks. Summers for me are always a very time consuming few months. My work actually picks up during that time period, my wife is off for the entire summer and I do a lot of traveling… just like most people do. This summer, however, has had a lot more traveling than normal, so I knew that I wouldn’t be able to keep up with blogging and tweeting and advocating and everything else that I normally do on a daily basis.
And ya know what? It felt so damn good to take this break. There have been plenty of times where I just felt overwhelmed with trying to keep up with all of the diabetes related initiatives that are always going on. I came to a point where I felt that I was doing something just to do it and I didn’t really have that much emotion or passion for whatever I was promoting or helping out with. I have a stack of about 5-6 diabetes related books that I just couldn’t read anymore because it was just too much diabetes.
After 10 years, these last few months have been my first real exposure to diabetes burnout. I just couldn’t take anymore diabetes other than the daily activities that I had to do to maintain a decent blood sugar. Do I want to go to the park with my nieces or read another post about the Scientific Sessions? Should I go out to the bar with my friends or write another post about my insulin pump? Should I hang out with my family and watch a movie together or chat online with others about diabetes?
To me, these answers were pretty damn easy to make over the last few months.
But, over the last few days, I have been missing it. I have began getting that itch again that I need to do something, I need to write something, I need to fight for something.
So, here I am. My batteries have been re-charged and I am ready to go. I know better than to just jump head first and go full speed ahead right away, but I am slowly getting more involved again and I hope y’all haven’t forgotten me too much!
I look forward to connecting and talking with you all again on a more frequent basis.
Back in 2012 I wrote about a new movie called, The Longest Swim, which is about the story of one kid attempting to save the life of his best friend with diabetes.
I received an email the other day from one of the film’s creators, co-producer Don Mainardi that the movie was released and is for sale from Amazon and Best Buy.
The main goal of the film is to help raise awareness about diabetes and to work together with non-profits like American Diabetes Association and JDRF.
You can buy the DVD here -The Longest Swim
Back in January when I had the pleasure to attend the Medtronic Diabetes Advocate Forum, one of the focus areas was the Medtronic Customer Service and their StartRight program. During the presentation, I was very excited about how much effort was being put into the Medtronic customer service team. In the past, I have had some bad experiences with customer service. However, Medtronic was the first medical company that actually would allow an individual rep to email me directly, and for those that know me, email is my ONLY form of communication.
When I started back up on the pump trial a couple of weeks ago, I received a phone call, voicemail and email follow up from the StartRight team to make sure that I had all of my supplies delivered, I prepared for my training and to see if I had any additional questions or concerns. After the training occurred and I started on the pump, I received another follow up a few days later to see if there were any questions or concerns again about being on the pump or Enlite sensor.
I think that this is a great way to handle a new customer being on a product. First, making sure that they have everything they need to get started and then provided some follow up support after they have been using the product for a few days.
Obviously, I live on social media and when I have complaints or issues that I need taken care of, I use social media to attempt to communicate with a company. I actually prefer doing business with a company that will communicate via social or email instead of those that always just want to call and discuss things over the phone. Have I mentioned I hate being on the phone yet?
Medtronic has been doing an amazing job with their social media customer service. After the first few days of being on the sensor, I mentioned on Twitter that I didn’t tape the sensor down properly, so I received a reply on Twitter asking if there were any specific questions that I had, and then was provided a link to the Medtronic support page that provided more details about the taping of the sensor….perfect.
Then, it got better the next day. I then had an email from Medtronic titled – Additional Tape Tips.
This is customization at its finest. Although this was a pre-formulated email, it was addressed to me and made it feel customized and unique to my situation and my issues (PR companies, take note!)
Like yesterday’s prompt, I’m not much of an expert here. The life hacking tricks that I use for diabetes have all came from other people’s recommendations. I’m not on the Dexcom currently because of my trial of the MiniMed 530G, but when I am wearing the Dex, I use the glass trick that was mentioned in the prompt and by Kerri.
The only hack that I might have right now is that I use the tape that comes with the Enlite sensors to hold it down on my infusion set as well and it has helped a lot. I have always had issues with keeping infusion sets staying on my stomach, but this tape lasts pretty much forever.
The tape already has a hole in the middle of it, but I cut the piece of tape in half so that I can put half of it on the the bottom half of the infusion set and the other half on the top part. This allows me to not cover up the plastic part of the infusion set that connects to the tubing.
Other than that, that’s pretty much my only diabetes life hack. Hopefully you can find some more at the list of other posts from today for Diabetes Blog Week.
Today’s topic for DBlog week is Diabetes Mantra or what helps you get through any of those down times that you may be having with diabetes.
I don’t have many diabetes specific mantras, but I live life with a few. The most specific diabetes related mantra that I have is… “It’s just a number” and that typically is said when I have a high blood sugar. It’s just one single number and I can correct it and move on from it.
I wish that I had more to write about this, but I don’t.
Today’s DBlog Week prompt is What Brings Me Down. I’ve always had a difficult time talking about the mental health and depression side of diabetes, because frankly, I rarely do experience it. I know that it sounds like a cop out, but I truly do filter out the negative thoughts into my brain and channel them into a positive.
Diabetes is tough, that’s for sure. It’s not easy to wake up every morning not knowing if you’re going to have a good day of blood sugars or a bad day of blood sugars. Are the same carbs I ate yesterday going to act differently than they will today? Who knows. Diabetes has made me such a stronger person to be able to handle everything that it throws at me.
I use the phrase, “it could always be worse” a lot when it comes to any negative situation that comes up in my life. I believe, at least for myself, that stress only leads to more stress. So in order to eliminate stress, channel that stress into action. Meaning, take whatever is getting you down or stressing you out, and find the positive of it and do more of the positive.
That is not just something I live by when it comes to diabetes, but life in general.